Brain Warriors

A community that understands

A little understanding.
A lot less alone.

Life with a rare condition affecting the brain can be complicated. Finding people who understand shouldn’t be.

Come join us

Free membership. Meaningful connection.

Three adults of different ages sitting together in conversation

Your experience
belongs here.

Brain Warriors brings together people affected by conditions such as CSF leak, IIH, SIH, dysautonomia, OCHOs, and related disorders. Even without a formal diagnosis, we make space for the uncertainty, the questions, and the everyday experience of living with a complex condition.

A place to feel heard.

We’re a community, a support group, and a patient advocacy group. Your experience matters here.

Get to know Brain Warriors

Looking forward, together.

We’re always sharing ideas and latest research we've come across in our own journeys. Members are encouraged to learn about both established scientific methods and investigational methods surrounding their condition.

Learn about our research